Director/Sr. Director, Patient Advocacy, Engagement, and Identification

Cambridge, MA        ·       Full time

Vigil Neuroscience is the world’s first microglia-focused therapeutics company. Our purpose is clear: to treat rare and common neurodegenerative diseases by restoring the vigilance of the microglia, the sentinel cells of the brain’s immune system. We are utilizing the tools of modern neuroscience drug development across multiple therapeutic modalities to rapidly deliver precision-based therapies to improve the lives of patients and their families.

Reporting to the SVP, Clinical and Medical Sciences, the Director/ Sr. Director of Patient Advocacy, Engagement, and Identification has primary responsibility for strategic oversight and execution in rare and common CNS indications.

Key Responsibilities:

• Lead the patient advocacy, engagement, and identification function to support corporate narrative positions, research and development objectives, and commercial priorities.
• Lead and develop long-term strategic partnerships and programs by building trusted and effective working relationships with global patient groups and patient representatives.
• Develop deep understanding of patient populations and key external trends impacting patient engagement.
• Ensure patient engagement is conducted ethically and transparently and includes patient and caregiver insights into the decision-making process.
• Partner with internal team to identify collaborative opportunities with patient groups aligned with business needs.
• Develop disease awareness and educational opportunities to support development objectives.
• Further strategic interests by Identifying key patient meetings to attend, support, and/or to have a Company presence.
• Prepare for and represent the company at patient meetings and share key insights and community feedback with the company.
• Design and manage patient registries in rare diseases of interest.
• Vendor management and oversight, including vendors supporting registries, genetic testing, and patient concierge services.
• Develop, maintain, and report on departmental budget, including forecasting in support of financial goals.
• Involved in building relationships with KOLs and sites to maximize scientific expertise, patient recruitment, and data collection.
• Prepare and present key study updates to senior management and other key stakeholders.

Candidate Profile:

• Experience in patient advocacy with a minimum of 7 years of experience in positions of increasing responsibility in a relevant industry (for example biopharma or non-profit organizations).
• BA/BS degree or equivalent in a health science field.
• Experience in rare diseases and/or neurology highly preferred.
• Strong background of building successful relationships with patient groups.
• Ability to drive strategy and implement day-to-day initiatives.
• Excellent communication and presentation skills.
• Ability to travel up to 25%

Please send a resume to careers@vigilneuro.com.  Vigil Neuroscience is an Equal Opportunity Employer.  Learn more about our team and mission – visit us:  www.vigilneuro.com.

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